health data ownership

All of Us celebrates one-year anniversary with public launch of participant data aggregator

By Dave Muoio 03:42 pm May 6, 2019

The NIH’s All of Us Research Program celebrated its one-year anniversary today with new updates on enrollment progress, previews of its upcoming cloud-based data platform for health researchers and the public beta launch of an online tool for viewing aggregated, de-identified information about the program’s enrollees. “I hoped [one year ago] that many would share this vision and help us achieve...

Backpack Health's personal health records add transgender, non-binary support

By Dave Muoio 03:30 pm March 29, 2019

Backpack Health, maker of an app and dashboard-based personal health record platform, announced this week the launch of a new dedicated group within the service specifically designed to help transgender and non-binary people manage their health data. Along with data regarding their general healthcare, the tool can track medical information unique to the needs of these populations including...