A small study of veterans with epilepsy, conducted by PatientsLikeMe and sponsored by pharmaceutical company UCB, shows that an online patient community can increase self-efficacy and self-management of patients. The study was published in the journal Neurology.
A total of 92 patients enrolled in the study and completed a six-month follow up survey, while an additional 157 consented to...
Mountain View, California-based Amiigo, which makes an activity tracker that raised $580,000 on Indiegogo in 2013, has teamed up with online patient community platform Alliance Health to launch a new study looking at the combined effect of wearables and peer support on heart failure patients.
“There are a lot of different questions we can begin to ask related to the value of a social networking...
PatientsLikeMe Vice President for Advocacy Sally Okun spoke at TEDMED about the idea of building a "patient lexicon" to make it as easy for patients to talk about their conditions and compare notes as it is for doctors.
"As a pallative care nurse, much of my time was spent in the homes of patients. Sometimes it simply was about giving them the opportunity to say to me 'Is this normal?' 'Do other...
